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You are here: Home / Archives for Down Syndrome

Down Syndrome

Wil Is Walking! – Down syndrome milestones

by Alan 6 Comments

Child with Down Syndrome walking

Milestones for child with Down Syndrome

Wil is now officially WALKING!!!  Currently, I’m sitting on our front lawn, surrounded by laughter, as we watch Wil circle back and forth, with arms raised, giggling at his newfound freedom.  Warmer weather has finally come to Northern Utah and Wil is celebrating his first walk in the grass this year.

Flying was easy but walking has been one of Wil’s hardest milestones to date. He started putting weight on his legs when he turned two and started attempting to step not soon after.  Our pediatrician explained to us that all kids with Down Syndrome hit their milestones at different times, but usually start walking and developing other fine motor skills between the ages of two and three. Because of the five-year gap between Wil and Ali, we had sort of forgotten some of the “average” milestone dates. So it didn’t seem too unnatural for him to be a year and a half behind the “average” walking time frame. Now that Rockwell has joined our family I have been noticing the milestone time frame differences.

We were all a bit surprised to see Rocko sitting up at six months compared to 10 months for Wil. Wil started crawling at 18 months and Rockwell (8 months) is already starting to show signs up crawling. It’s really not an issue for me that Wil is slightly delayed, I’ve loved the opportunity to hold him and carry him for an extra year and a half.  Along with Wil’s newfound mobility, his vocabulary has also taken a huge step forward. Our pediatrician told us to expect these two milestones to coincide with each other but it was a real shock for us to hear him start calling all of his siblings by their names not soon after he started walking.

Mr. Wil still tends to crawl from time to time which we don’t mind. We are all going to miss that little Mowgli crawl one day.

Filed Under: Down Syndrome, Parenting

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Alan Lawrence

thatdadblog

After lots of prayers and counseling with her doct After lots of prayers and counseling with her doctor, Nikki has started talking a medication called Hyramoz which after time (hopefully in a year or two) can put the Ankylosing Spondylitis in remission. 
she’s also taking something to help ease her pain. She called me from Costco crying, she was so excited that she could lift a bag of flour into her cart without pain.
Diet is another big change that she is doing to help
Well, thank you so much for your prayers and ask you to please continue to pray for her that this will soon go into remission.
Yes, we are that family. If you’re a part of the Yes, we are that family.
If you’re a part of the T21 tribe you get it - we take care of each other and if we can meet another family in the tribe nothing gets in our way.
#downsyndromelove #downsyndrome #downsyndromeawareness
#downsyndromerocks #21 #trisomy 21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #mystory #dadlife
I was showering and thought I heard someone come i I was showering and thought I heard someone come in the bathroom.  I finished washing my face, turned around and there was Wil 
“Hey Dad!” 
He knows how to pick our bathroom lock and said he was bored and missed me. It’s hard to get mad at that. 

He is still learning the concept of privacy but at least he rolled up his pant legs! 😂

#dadlife #downsyndrome
Throw back to when Wil was young and we were comin Throw back to when Wil was young and we were coming home from a vacation and were letting everyone exit our plane before we organized our big family to exit. While we waited, Wil made everyone’s night a little brighter. #downsyndrome #reels #dadlife #downsyndromeawareness
Sharing this with permission from Nikki to possibl Sharing this with permission from Nikki to possibly connect her with others who have been through this and also to ask for your prayers as she navigate her daily pain and for guidance on solutions.  Thank you! 
these photos are from a recent trip to a Hot Springs in Idaho, which felt so good on her joints. 
#ankylosingspondylitis #ankylosingspondylitisawareness
“My butt is ouchy” 😂 Leidy and Rocko spent “My butt is ouchy” 😂 Leidy and Rocko spent the day on the mountain with me learning to snowboard.  They both did great! Leidy was very nervous and told me she was worried that she was going to throw up but by the end she was going on the lift by herself and told me she was happy. 
Rocko was a trooper and told me I could go do some runs by myself he wanted to concentrate 😂 
These two pushed themselves and over came some fears today and I am very proud. 
#prouddad #familyiseverything #dadlife
Sweet 16!! It’s hard to believe that its been th Sweet 16!! It’s hard to believe that its been three years since I first met Leidy in her orphanage while helping to film a project that was advocating for orphans in Colombia who were close to aging out.  Now she is home celebrating her first birthday with her new family! 
This happy, and stubborn girl has a big heart and even bigger dreams.  She was full of joy on her first birthday with her new family!
Meeting a fellow Dad that shares the same Down Syn Meeting a fellow Dad that shares the same Down Syndrome connection erases all awkwardness of bear hugging in the middle of a shopping center. 
YOU ARE OFFICIALLY BROTHERS FOR LIFE!! 
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#advocatelikeadad #dadlife #extrachromosome #downsyndrome #downsyndromeawareness #downsyndromerocks #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #mystory #changingthefaceofbeauty
You sourdough mamas know the feeling. if you want You sourdough mamas know the feeling.  if you want to be a domestic goddess and try sourdough bread but you’re intimidated. Send me a DM - Nikki is sharing some of her starts and she also has a 15 minute instructional video on how to make sourdough bread from start to finish 👍
#sourdough #sourdoughstarter #sourdoughmama #sourdoughbaking #domesticgoddess #funnyvideos 
#homeschool #pioneerwoman
Three Running tips I learned from my new trainer:  1. Randomly laugh for minutes at time for no apparent reason. 2. Always check to see if you are being tracked my a bear or racoon. 3. Hug your running buddy while you are running to motivate each other. Looking forward to learning more from my new running coach. He is the best in the biz. 
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#runhappy #noexcuses #downsyndrome #theluckyfew #fyp #prouddad #viralreels #dadlife
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