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You are here: Home / Archives for parenting

parenting

Learning to find the blessings of having a child with Down Syndrome

by Alan 2 Comments

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We picked the kids up from Nikki’s parents today, it was nice having the break but are excited to have them home with their new brother.   The past week has been an emotional roller coaster and having the kids home has allowed me to become grounded again. I did not anticipate how much the kids would gravitate to Wil.  I’m guessing it’s in part due to the fact that they are older, but getting a chance to feed Wil a bottle is usually the result of winning a thumb war or paper, rock, scissors. Nikolas actually asked if he could change one of his diapers! I was tempted to accept his offer but realized it would probably turn into a bigger mess. The words, “Who wants to hold Wil” barely get out of Nikki’s mouth before all of our kids appear with wide eyes, jumping up and down to the sounds. We’ve actually started using the option of not being able to hold Wil as a punishment if the kids are misbehaving. My kids are teaching me so much about unconditional love. We watched a handful of videos tonight to help us better understand Down Syndrome.

 My favorite video was called “Just Like You“, it brought tears to my eyes.

You need to watch it. We watched it multiple times and it sparked a touching conversation with my children. After the video, Zac told us that he was excited for Wil to grow up. He told us that he would protect him because it would make him sad if Wil was ever teased. I gave him a huge hug, I was so proud of him, this very thing had been on my mind. How can I protect this little dude from the things the world was going to throw at him,  I thought back to my conversation with Nikki in the hospital and resolved that this was one of those things I could not control.

Filed Under: Down Syndrome, Parenting Tagged With: Down Syndrome, newborn, parenting

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Alan Lawrence

thatdadblog

After lots of prayers and counseling with her doct After lots of prayers and counseling with her doctor, Nikki has started talking a medication called Hyramoz which after time (hopefully in a year or two) can put the Ankylosing Spondylitis in remission. 
she’s also taking something to help ease her pain. She called me from Costco crying, she was so excited that she could lift a bag of flour into her cart without pain.
Diet is another big change that she is doing to help
Well, thank you so much for your prayers and ask you to please continue to pray for her that this will soon go into remission.
Yes, we are that family. If you’re a part of the Yes, we are that family.
If you’re a part of the T21 tribe you get it - we take care of each other and if we can meet another family in the tribe nothing gets in our way.
#downsyndromelove #downsyndrome #downsyndromeawareness
#downsyndromerocks #21 #trisomy 21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #mystory #dadlife
I was showering and thought I heard someone come i I was showering and thought I heard someone come in the bathroom.  I finished washing my face, turned around and there was Wil 
“Hey Dad!” 
He knows how to pick our bathroom lock and said he was bored and missed me. It’s hard to get mad at that. 

He is still learning the concept of privacy but at least he rolled up his pant legs! 😂

#dadlife #downsyndrome
Throw back to when Wil was young and we were comin Throw back to when Wil was young and we were coming home from a vacation and were letting everyone exit our plane before we organized our big family to exit. While we waited, Wil made everyone’s night a little brighter. #downsyndrome #reels #dadlife #downsyndromeawareness
Sharing this with permission from Nikki to possibl Sharing this with permission from Nikki to possibly connect her with others who have been through this and also to ask for your prayers as she navigate her daily pain and for guidance on solutions.  Thank you! 
these photos are from a recent trip to a Hot Springs in Idaho, which felt so good on her joints. 
#ankylosingspondylitis #ankylosingspondylitisawareness
“My butt is ouchy” 😂 Leidy and Rocko spent “My butt is ouchy” 😂 Leidy and Rocko spent the day on the mountain with me learning to snowboard.  They both did great! Leidy was very nervous and told me she was worried that she was going to throw up but by the end she was going on the lift by herself and told me she was happy. 
Rocko was a trooper and told me I could go do some runs by myself he wanted to concentrate 😂 
These two pushed themselves and over came some fears today and I am very proud. 
#prouddad #familyiseverything #dadlife
Sweet 16!! It’s hard to believe that its been th Sweet 16!! It’s hard to believe that its been three years since I first met Leidy in her orphanage while helping to film a project that was advocating for orphans in Colombia who were close to aging out.  Now she is home celebrating her first birthday with her new family! 
This happy, and stubborn girl has a big heart and even bigger dreams.  She was full of joy on her first birthday with her new family!
Meeting a fellow Dad that shares the same Down Syn Meeting a fellow Dad that shares the same Down Syndrome connection erases all awkwardness of bear hugging in the middle of a shopping center. 
YOU ARE OFFICIALLY BROTHERS FOR LIFE!! 
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#advocatelikeadad #dadlife #extrachromosome #downsyndrome #downsyndromeawareness #downsyndromerocks #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #mystory #changingthefaceofbeauty
You sourdough mamas know the feeling. if you want You sourdough mamas know the feeling.  if you want to be a domestic goddess and try sourdough bread but you’re intimidated. Send me a DM - Nikki is sharing some of her starts and she also has a 15 minute instructional video on how to make sourdough bread from start to finish 👍
#sourdough #sourdoughstarter #sourdoughmama #sourdoughbaking #domesticgoddess #funnyvideos 
#homeschool #pioneerwoman
Three Running tips I learned from my new trainer:  1. Randomly laugh for minutes at time for no apparent reason. 2. Always check to see if you are being tracked my a bear or racoon. 3. Hug your running buddy while you are running to motivate each other. Looking forward to learning more from my new running coach. He is the best in the biz. 
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#runhappy #noexcuses #downsyndrome #theluckyfew #fyp #prouddad #viralreels #dadlife
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